Betty Lou Wojciechowski

Betty Lou Wojciechowski and her family have been impacted by a rare disease, Pulmonary Arterial Hypertension for over 40 years.

Betty Lou taught elementary school for 35 years. She served on the Pulmonary Hypertension Association Board of Trustees for 20 years and has also as a Caregiver, a public speaker, a support group leader, and a consultant. She and her family have raised over $400,000 for research through fundraisers.

Although she, herself does not have the rare disease, Pulmonary Hypertension, her husband Jerry, and all 4 of their children have been diagnosed with the disease, rarely found in families.

Sadly, her sons Michael, (24) and Matthew (4) as well her husband Jerry (59) died from this rare condition.

Her daughter Michelle (53) and son Mark (47) are both patients currently on multiple therapies.

Betty Lou lives in Southern California and has 4 grandchildren and 2 great grandchildren. Only one of them has inherited the gene mutation that caused the illness in her family

She continues to trust God through the tough times, pray for her children and grandchildren and to advocate for patients in many ways.