Kelly launched Little Hercules Foundation on January 1, 2013, after her youngest son, Jackson, was diagnosed with Duchenne Muscular Dystrophy at the age of five. After desperately searching for a treatment for her son only to find none, Kelly decided to leave her career and invest all her time and energy fighting Duchenne.
As President of Little Hercules Foundation, Kelly focuses on health policy and its impact on the daily lives of those living with rare diseases. In 2021, Kelly was appointed to Ohio’s Rare Disease Advisory Council by Governor Dewine.